Skip to main content

Mito what?

Me and the fam walked in the Mito Walk 2008 on Saturday to support our dear friends daughter, Abigail.  
\Abigail has mitchondrial disease (read more here) which in laymen's terms means her energy factory in her body doesn't work right...she can't regulate her body temp, she has ticks, dystonia, feeding issues and many more things. 

This is Miss Abigail...isn't she darling? 

And this is "the Motley Crew"...well named I think!  

Sofia had a great day...loves being outside!  
Look, it's Sofie Cottontail!  

This is the group of folks who came out to support Abigail and raise money for Mito research just for her!  Amazing!!

My friend, Nicole...Abigail's Mom.  She is freaking amazing...one of the best Mom's in the world.  In spite of Abigail's illness, she is treated like a kid...love that!
 Abigail is a shining star in what often times seems like a dark world...in spite of her terminal illness.  So my hope is that you read a little about mitochondrial disease...make urself aware and enjoy our pics. 

Comments

Anonymous said…
Thanks for writing about the walk. It was heartwarming to see all the friends that came out in support of Abigail and other kiddos with Mitochondrial disease. You Rock!!
Anonymous said…
You DO Rock!:)
Karen said…
What a little cutie Abigail is. She is so blessed to have a great mom and great friends.
Tracy said…
keeps life in perspective. blessings & healing for little Abigail.
Wep said…
What an awesome way to spend a weekend :)
GypsiAdventure said…
Thats awesome...she's adorable!!
~K
Wendy said…
What a wonderful thing to do as a family to support this little girl! Looks like you had a wonderful time. I'll keep this family in my prayers!
Thank you for the insight and God BLess!!
My prayers are with Abigail!
Michelle said…
It looks/sounds like it was a great walk to raise awareness for mito disease...how wonderful that your family participated! Abigial is a beautiful girl and will be in my prayers.

And now I'm embarrassed because I have been meaning to email you (or ask for your email!) and I kept forgetting...but you left a comment on my Buddy Walk post and you asked how to donate for Kayla's team. I'm sorry I never got back with you on that! If you're still interested there is a link on my blog on the top left side under the header for the first giving site... or you can go to ww.firstgiving.com/kaylah - thanks for asking!

Popular posts from this blog

tuesday tribute---for tuesday

go blog yourself has been on my reading list for quite sometime...and so i really came to love little tuesday whitt and her whole sweet fam and became involved in praying for them in tuesday's battle with that stinky neuroblastoma . tuesday's parents are totally amazing...they inspire me! although tuesday went to play with jesus not so long ago, there have been so many people that are changed because of the courage and strength and honesty of the whitt family. on the day of celebration of tuesday's life, a number of folks who couldn't make it out to the funeral, took their kids on a 'wagie ride', which was one of tuesday's fav things. we all posted up our pics...shared our experiences with each other...and hugged our kiddos a little tighter. my kiddos wagie ride is here . from that precious little tuesday and her honorary wagie ride, a blog spawned...of course...and it is dedicated to nothing more than, in their words, "to keep track of lives touc...

random acts...GNO

over at GNO, there's a few of us who decided to challenge ourselves last week to perform a random act of kindness.   i talked with my girls and hubs about what we could do... we reserve some funds each month out of our giving to put towards a current or urgent need that we find.  i think it's important to let the kids see how we give as family...and they should be part of that decision too . as we were talking, and eating chinese...come on, you know there would be eating...i open my fortune cookie.  and this is it!! i was out getting a few minutes of alone time and decided to pay hubs forward by getting jiffy lube to do the oil change.  while i was there, i remembered how hard it was being a single mom.  i remembered that the little things, like oil changes, suddenly became bigger things and honestly, more expensive things.  *light bulb!!!* thomas rang me up for my oil change and asked if they had any scheduled appointments that i could pay for.  he looked at me a little odd......

A lesson in NOT BEING STUPID

What NOT to say to an adoptive family... Any of you all that know us know that we are an adoptive family...and for those that don't just look at our pic.  It will be obvious.  We are different sizes and shapes and colors.  That's why we call ourselves the "motley crew".  I know, pretty funny. Here's the deal...a few things that I don't need strangers to say to me, or tell me: 1.   I know that I'm white and my #3 daughter is brown.  I live with her.  Your revelation is not mine.   2.   Yes...some of my kids don't look like me.   3.   My kids have ears and are old enough to understand the stupid things you say.  So don't say "where's she from?"  I might have to kill you if you do.  Consider yourself warned. 4.   Just because an AA kid is adopted, doesn't mean they are from Africa.  Look around...here in the US we have AA people too. 5.   Don't ask me which of my kids are my REAL ones.  Clue...we are all real and so are you.....