A Thorn Among Roses

ok, i have totally fallen in love with gwendolyn strong ...i'm not gonna lie! i found them on the comment-a-thon tuesday tribute and have not stopped thinking about them. the momma, victoria and daddy, bill, will melt your heart with their love and passion for not only their gorgeous daughter, but for their relentless efforts to get a bill passed to cure SMA ...and it's not that far away from happening...and you can help. here's what victoria {momma} had to say, "I think, perhaps, I am obsessed. No, I know I am. Each day I check the petition, multiple times a day actually. I read the comments people write and the places they are from. I look for patterns to see what outreach efforts have worked. I think about how to reach more people , how to gain more support, what to try next...every single day.Perhaps it seems futile, perhaps pathetic. But to be told, "There is nothing you can do. Go home and love your baby" -- well, that is impossible. We have no cours...

you all did something amazing this week...i did the labor part. you donated $250 to neuroblastoma research in honor of cora and tuesday!!!! your comments {over the 250 goal} allowed me and hubs to make that donation...and educate lots of folks along the way. not only that, i have found some new kiddos and fams that could use prayer. so that's one of the things i did this week. i become and advocate for gwendolyn strong and her family who is fighting to get a petition signed to pass a bill quickly for a quick resolve to SMA, spinal muscular atrophy. so go on over and do a little helping out...i know you want to because you all want to help out so much. and it only takes like 30 seconds...seriously! the other thing i continued this week is writing letters to parents of kiddos in the NICU and PICU. i know it's not gonna change the world, but i figure a little glimpse of hope and a smile from someone outside of your hospital world can make a little difference...and diligentl...